Symposia Session ISSPD Congress 2023

The journey of the family member/carer and the impact of their experience on outcomes for family members and those who have borderline personality disorder. (17726)

Lynn Courey 1 , Meagan Henderson 2 , Doreen Hyndman 1 , Mike Menu 1
  1. The Sashbear Foundation, Etobicoke, ON, Canada
  2. NEABPD Australia, Melbourne, Victoria, Australia

Title

Impact of a more skillful family environment on consumers: transforming family environments with skills and hope.

Author: Mike Menu Advisor-The Sashbear Foundation 

 

ABSTRACT

Objectives

Highlight and analyze the result of qualitative and data collected from consumers whose family members have learned skills aimed at improving relationship within the family environment.

 

Method

Analyze data using questionnaires and semi-structured interviews with consumers whose family members/carers have taken evidence-based skills programs.

 

Results

Findings show consumers benefit directly when their family members(carers) are engaged in learning skills that create a more validating family environment. The impact of a more understanding family environment on consumers helps them not only within their family environment but also outside of that environment.

 

Conclusions

Family engagement with effective skills does matter to consumers. Further research could explore which specific skills learned by family members have the most positive impact on consumers.

 

Title

Expressed needs of carers: data from an online education series.

Author: Doreen Hyndman, Program Manager -The Sashbear Foundation 

ABSTRACT

 

 Objectives

Discuss the expressed needs of carers of individuals (consumers) with BPD. Provide an overview of the family member journey through their attempts to gain understanding, access services, and improve family relationships.

 

Method

Examine submitted questions and survey responses from an audience of 2000+ North American carers who attended a series of 25 online lecture presentations on topics related to emotion dysregulation from 2020-2023.

 

Results

Feedback indicates a high interest among Carers for information about the progression of personality disorders, and ongoing difficulty in accessing evidence-based information about diagnosis, treatment, and prognosis. Carers express a desire to be effectively engaged in supporting their loved ones. Comparisons will be drawn between those who attended a DBT skills group and those who have not.

 

Conclusions

Feedback from the lecture series indicates Carers still have difficultly accessing accurate information about personality disorders, and a need for services to provide support and skills for them to be effectively engaged. Research is needed to better understand Carers needs at various stages of the journey from early identification through treatment and recovery.

 

Title

Increasing family member effectiveness through increased engagement: increasing empowerment and mastery through ongoing involvement in helping other families acquire skills and hope.

 Author: Lynn Courey Founder- The Sashbear Foundation  

 

ABSTRACT

Objectives

Highlight and analyze the result of qualitative and data collected from family members involved in helping other family members by sharing skills learned and discuss the impacts of engagement for their family and their environment.

 

Method

Analyze data using questionnaires and semi-structured interviews with trained peer (family members/carers) facilitators delivering skills to other family members with the Family Connections program.

 

Results

Findings show when family members(carers) are involved and engaged beyond their initial introduction to the skills then they continue regaining balance in their lives and giving back to the community.  They also provide a safe environment for other family members to share and learn in the skills program. The impact of their involvement also influences positively their interaction with their loved ones (consumers).  

 

Conclusions

Engaging family members as skills facilitators allow the family member to deepen their knowledge and understanding of the applied DBT skills and. Peer facilitation may serve as guide for other opportunities for peer engagement. 

 

Title                

Using key findings to create an optimum framework for Lived Experience Carers and Consumers to have a positive and supportive environment.

 Author: Meagan Henderson – CEO, NEABPD Australia 

 

ABSTRACT

Objectives

Demonstrate that by providing Lived Experience Carers and Consumers with a shared set of skills and tools will provide better outcomes for both parties. To validate that these skills and tools are best provided as early as possible into the journey.

 

Method

Analyze findings from research studies and semi-structured interviews with both lived experience carers and consumers to identify specific activities that can be implemented across both groups to improve the quality of life.

  

Results

Findings show that when Lived Experience Carers are given the skills and tools, they have increased confidence to positively support their family member.  Further, when the Lived Experience Carer has these skills, the Lived Experience Consumer finds it helpful to be surrounded by an environment that is more easily able to support them effectively.

  

Conclusions

Providing Lived Experience Carers with more skills that give them the knowledge to positively support their family members allows the lived experience consumer to feel more supported in their family environment.

 

Title 

Discussant 

Carla Sharp, Ph.D. is John and Rebecca Moores Professor of Clinical Psychology at the University of Houston and Associate Dean for Faculty and Research